Personal Health Records for people with Developmental Disability
A Personal Health Record (PHR) can be an effective tool in facilitating health management for people who have chronic or complex health problems, particularly if they are likely to be moved from place to place, with only scanty file records going with them. People who have an intellectual disability, with or without communication problems, are especially vulnerable to inadequate health care, as they are unlikely to carry key health information in their heads or to be able to convey it effectively to a new doctor. The PHR provides a comprehensive health record that is owned and held by the patients themselves. It 'grows' with the person, as new information is added and old information is retained as past history.
