CDDH Victoria

Links

Advocacy and information

Association for Children with a Disability

Australian Association for Families of Children with Disability, the National Network for family support. http://www.aafcd.org.au/

Disability Online http://www.disability.vic.gov.au/

Self Advocacy Groups :

Women with Disabilities Australia - Home page of the Women with Disabilities Organisation. http://www.wwda.org.au/index.htm

Disability Online Information for people with a disability, their families and carers. http://www.disability.vic.gov.au/

Disability Rights Victoria (DRC). http://www.advocacyhouse.org/drv/about.html

Action on Disability within Ethnic Communities (ADEC). http://www.adec.org.au/

Aids and Equipment

Victorian Aids and Equipment Program http://hnb.dhs.vic.gov.au/ds/disabilitysite.nsf/pages/pub_aids

Independent Living Centre http://www.yooralla.com.au

Novitatech . Online catalogue of aids and equipment for people with physical disabilities. http://www.novitatech.org.au

Spectronics. Innovative learning and communication technologies and training. www.spectronicsinoz.com

Tadvic an organisation whose volunteer members design, construct or modify equipment for people with disabilities. This service is provided where no commercially available solution will meet their needs. http://www.tadvic.asn.au/

Autism

The Australian Autism Directory. http://autism.healingwell.com/national.htm

Autism Victoria http://www.autismvictoria.org.au/home/

Autism Help (Gateways)
www.autismhelp.info

Cerebral palsy

Australian Cerebral Palsy Association http://www.acpa-inc.org.au/

Cerebral Palsy Association of Western Australia http://www.cpawa.com.au/

Australian Cerebral Palsy Register. http://secure.cpregister-aus.com.au

Cerebral Palsy Support Network http://www.cpsn.info

Communication

Communication Aid Users Society "For people with little or no speech but plenty to say!" http://users.bigpond.com/causinc/

Communication Resource Centre. A Victorian state-wide service, working for people with complex communication needs to create inclusive environments. Our approach is person centred and we work within a community inclusion framework. http://www.scopevic.org.au/therapy_crc.html

Cultural resources

Indigenous Australians

The National Aboriginal Community Controlled Health Organisation (NACCHO) http://www.naccho.org.au/

Web-based information on Indigenous health. http://www.healthinfonet.ecu.edu.au/html/html_health/health_home.htm

Multicultural:

Centre for Culture, Ethnicity and Health http://www.ceh.org.au/

Guardianship & Administration information: Victoria's Attorney-General and the Public Advocate have launched the translation of Office of the Public Advocate information fact sheets into eleven languages. http://www.publicadvocate.vic.gov.au

The Health Translations Online Directory will serve as a web portal providing direct links to translated health resources. http://www.healthtranslations.vic.gov.au/

Victorian Transcultural Psychiatric Unit

www.vtpu.org.au/about/index.php

The Multilingual Bibliography on the Mini-Mental State Examination . www.vtpu.org.au/resources/translatedinstruments/mmse/index.php

Multicultural Mental Health Australia http://www.mmha.org.au/

Dental Health

Dental health Services Victoria. http://www.dhsv.org.au

Fact sheets re Strategies for oral care in people with developmental disabilities http://www.nidcr.nih.gov

British Society for Disability and Oral Health. www.bsdh.org.uk/

Depression

Beyond Blue. The national depression initiative. http://www.beyondblue.org.au/index.aspx

National Association for Loss and Grief. http://www.griefaustralia.org/

Disability Services - Federal

Centrelink: Financial Assistance http://www.centrelink.gov.au

Commonwealth Carelink Centres www.commcarelink.health.gov.au

Commonwealth legislation http://members.ozemail.com.au/~ddasp/Agovdispolicy.htm

Disability Services - State

Disability Online Information for people with a disability, their families and carers. This site also has a huge list of links. http://www.disability.vic.gov.au/

Department of Human Services (DHS) http://hnp.dhs.vic.gov.au/

Similar services exist in other States And Territories and further information about these can be accessed through 'Links' on http://www.disability.vic.gov.au/

Families and Carers

Carers Victoria http://www.carersvic.org.au/

Commonwealth Carelink Centres www.commcarelink.health.gov.au

Financial assistance

Centrelink: Financial Assistance http://www.centrelink.gov.au

Fragile X Syndrome

http://www.fragilex.org.au/ Fragile X Association of Australia - consumer website for people with Fragile X and their families.

Genetics

Centre for Genetics Education. http://www.genetics.com.au

Genetic Health Services Victoria. http://www.genetichealthvic.net.au

Genetic Support Network Victoria http://www.gsnv.org.au/

Genetics File - A GP Resource http://www.mcri.edu.au/GF/pages/GeneticsFile.asp

The Human Genome http://www.wellcome.ac.uk/en/genome/index.html

Online Mendelian Inheritance in Man (OMIM) : a resource for information on genetic conditions www.ncbi.nlm.nih.gov/omim

Grief and Loss

National Association for Loss and Grief. http://www.griefaustralia.org/

Healthcare checklists

Personal Health Record/CDDHV www.cddh.monash.org/products/PHR

C.H.A.P. - Comprehensive Health Assessment Program www.sph.uq.edu.au/QCIDD/chap/index.html

Healthcare Issues

Text : Management Guidelines: Developmental Disability . Therapeutic Guidelines. 2005. www.tg.com.au

Journal Developmental Disability. AFP. August. 2004 http://www.racgp.org.au/folder.asp?id=1038

Better Health Channel This is a general health information and services site. There are Fact Sheets on this site for many developmental disabilities. www.betterhealth.vic.gov.au

Health Guidelines For Adults With An Intellectual Disability : An IASSID Publication http://www.intellectualdisability.info/mental_phys_health/health_guide_adlt.htm

A useful website from AAMR with links to disability related journals http://www.aamr.org/Groups/si/MH/DDJournals.html

A free online version of the well-respected Dictionary of Developmental Disabilities Terminology is now available. This dictionary contains more than 3500 terms and is a great resource for families, service providers and students. http://www.pbrookes.com/dictionary/

Learning about Intellectual Disabilities Learning about Intellectual Disabilities and Health is a United Kingdom web-based learning resource for medical and health care students and practitioners launched in 2002 covering a broad focus. Articles include not only subjects such as prevention and diagnosis, but also social care issues, family issues and perspectives, and the perspectives of people with intellectual disabilities themselves. http://www.intellectualdisability.info/home/about.html

Healthcare - specialist academic/medical centres

Centre for Developmental Disability Health Victoria www.cddh.monash.org

Similar organisations in other states

Queensland Centre for Developmental and Intellectual Disability. www.sph.uq.edu.au/QCIDD

Centre for Developmental Disability Studies. www.cdds.med.usyd.edu.au

Human Relations Counselling and Resources

Centre for Developmental Disability Health www.cddh.monash.org

Family Planning Australia www.fpv.org.au .

Human Rights and Equal Opportunity

Human Rights and Equal Opportunity Commission. http://www.hreoc.gov.au/disability_rights/

International Association for the Scientific Study of Intellectual Disability (IASSID) This site contains standards for the physical and mental health care of people with intellectual disabilities http://www.iassid.org/spec-int-gr/aging/sirg-aging.htm

United Nations Declaration on the Rights of Disabled Persons. http://www1.umn.edu/humanrts/instree/t3drdp.htm

Intellectual Disability.

Understanding intellectual disability . Information on the Victorian Government website: http://hnb.dhs.vic.gov.au/ds/disabilitysite.nsf/pages/pub_intellect

Legal issues.

Guardianship and Administration

Victoria . Victorian Civil and Administrative Tribunal (VCAT): www.vcat.vic.gov.au

Tasmania . Guardianship and Administration Board. http://www.guardianship.tas.gov.au/

New South Wales . Office of the Public Guardian. http://www.lawlink.nsw.gov.au/opg

Queensland . Dept of Justice and Attorney-General. http://www.justice.qld.gov.au/guardian/home.htm

South Australia . Office of the Public Advocate. http://www.opa.sa.gov.au/

Northern Territory . Office of Adult Guardianship. http://www.nt.gov.au/health/org_supp/performance_audit/adult_guard/guardianship.shtml

Western Australia . Guardianship and Administrative Board. http://www.justice.wa.gov.au/

Australian Capital Territory . Office of the Community Advocate. http://www.oca.act.gov.au

Office of the Public Advocate ( Victoria ) www.publicadvocate.vic.gov.au

Villamanta Legal Service . A community legal centre specializing in disability related legal issues. http://www.villamanta.org.au/

Mental health

The Bridging Project http://www.bridgingproject.org.au/

Victoria's Mental Health Services www.health.vic.gov.au/mentalhealth/index.htm

Victorian Transcultural Psychiatric Unit www.vtpu.org.au/about/index.php

Multicultural Mental Health Australia . http://www.mmha.org.au/

Alzheimer's Australia . www.alzheimers.org.au/

Victorian Dual Disability Service (VDDS) www.vdds.org.au

Research

The Bridging Project http://www.bridgingproject.org.au/

The International Association for the Scientific Study of Intellectual Disabilities www.iassid.org/

Sensory impairment

Royal Victorian Institute for the Blind. www.rvib.org.au/

Vicdeaf www.vicdeaf.com.au/

Victorian Deaf Blind Association . http://www.dba.asn.au/

Sexuality and human relations

Publications on sexuality and disability . http://www.achievableconcepts.com.au/Aust%20website/sex_resources.htm

Sexual assault or abuse

Centre Against Sexual Assault. http://www.secasa.com.au/

Disability Services Abuse & Neglect Hotline
Phone 1800 880 052
www.disabilityhotline.org

Sibling support

Siblings Australia www.siblingsaustralia.org.au/

'Supporting Siblings' booklet available from the Association for Children with a Disability web site www.acd.org.au

Statistics

Australian Institute of Health and Welfare. Disability Prevalence and Trends. (2003). http://www.aihw.gov.au/publications/dis/dpt/index.html#s01

Support Groups

Australian Association for Families of Children with Disability. http://www.aafcd.org.au/

Support Groups Directory, Royal Children’s Hospital, Melbourne. http://www.rch.org.au/supportgroups/directory/

Genetic Support Network of Victoria. http://gsnv.org.au/

Supporting Aussie Kids with Kabuki syndrome. http://www.sakks.org

Women's health

Women with Disabilities Australia . Home page of the Women with Disabilities Organisation www.wwda.org.au/index.htm

Menstrual Management: A Guide for GPs. Available through CDDHV: www.cddh.monash.org

Options for Menstrual Management: Information and Resources for Staff and Carers of Women with Intellectual Disabilities.Available through CDDHV: www.cddh.monash.org

PapScreen Victoria have a pamphlet on the special issues faced by women with intellectual disabilities when having a pap test. http://www.papscreen.org/index.htm